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We are often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this: |
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Mended Little Hearts of San Antonio |
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Caleb’s Story
It was April of 2005. After dealing with two back-to-back miscarriages, we found ourselves getting a sonogram at a maternal care specialist, just as a precaution. While there, we were also going to find out the sex of the baby and were excited to find that we were having a boy! However, after several long hours in the office, we began to sense that something was wrong… Read More |
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Born: August 2005 Heart condition: Hypoplastic Right Ventricle, VSD, Pulmonary Stenosis, history of arrhythmia. |
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Emily's Story
Emily was born in 1993 in Cedar Rapids, Iowa. We were unaware of Emily's heart condition until 5 days after her birth. Her nurse in the NICU noticed from her chest x ray that her heart looked “boot shaped”. She called for a cardiology consult and within an hour, our lives were changed drastically… Read More |
Last Update: 5/12/08 |
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Little hearts hold big hopes... |
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Our Stories |
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Sharing an experience can be very helpful, especially in trying times. As our stories are gathered they will be posted here. |
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If you would like to add your child’s story to this page or the angels page, please email your story and picture SanAntonioTX@mendedlittlehearts.org. |
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Alejandro’s Story
Alejandro was born at 12:19 pm weighing in at 7 pounds, 3 ounces. We held him for about an hour before they took him off to the nursery for his bath. After about a few hours, I wanted to see my baby. I called the nursery where they informed me he was breathing too rapidly; therefore, they were going to observe him and would be taking an X-ray shortly per his pediatrician instructions. I wasn't worried… |
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Born: April 2003 Heart condition: Pulmonary Atresia |
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Born: November 2006 Heart condition: Tetrology of Fallot with a Pulmonary Artery Atresia and Ventricular Septal Defect |
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Mia’s Story
Our youngest child Mia Aurora was born on April 2003 with a heart defect called Pulmonary Atresia. It was the biggest shock in our life. I don't know how we overcame the shocking few months after she was born but somehow with God's help here I am retelling this story. |
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Daniel’s Story Our sweet Daniel was born on November 2006, and we could not have been happier. He was our third child and only boy; the completion of our happy family. Daniel was the sweet little man that we had dreamt of for years. I must admit that my dream child looked a bit blue when he was born; however, I was assured several times by our delivery nurse that “babies can look a bit like this when they are born.” |
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Coree’s Story
Coree was born Dec 1991 @ 12:37 am at 12 pounds 5 ounces and 23 inches long. We had NO idea he was ill, until I had him in my room for the first time to hold him. He was a day old, he had been in the NICU because he was born a week early. |